?:abstract
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The International Patient Summary Standard (EN 17269) normalizes the dataset within the European Guideline on cross-border exchange of a patient summary. This dataset has been widely appreciated and been taken as the basis for projects in both Europe and wider afield, e.g. U.S.A, Canada and more. The dataset is a relatively mature dataset and it is currently in its third iteration (i.e., 2013, 2016, 2020). Even so, to move from a policy-driven guideline to a formal standard was not straight forward. The paper describes how the \'minimal and non-exhaustive\' dataset could be the basis for a reference standard; one that was intended to facilitate both an \'implementable\' and \'sustainable\' solution. In particular, the requirement of \'extensibility\' for the standard dataset had to be addressed.
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