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  • [\'Batten Disease Family Association, Hamilton House, Mabledon Place, London, WC1H9BB, UK. amandamortensen@bdfa-uk.org.uk.\', \'Rare Disease Research Partners, MPS House, Amersham, HP7 9LP, UK.\']
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  • 10.1186/s13023-021-02147-y
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  • Orphanet journal of rare diseases
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  • 35045884
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  • Impact of the COVID-19 pandemic on access to the cerliponase alfa managed access agreement in England for CLN2 treatment.
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  • 2022

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